Monday, 25 September, 2017

United Kingdom denies transfer to Rome hospital for terminally ill baby Charlie Gard

Great Ormond Street Hospital in London Charlie Gard at Great Ormond Street Hospital in London
Garry Little | 06 July, 2017, 00:12

The boy's mum Chiara Paolini has followed the tragic case of ten month old Charlie Gard from her home in Massarosa, near Florence, and has urged his parents not to give up hope.

Charlie's mother thanked the Vatican children's hospital for their offer, reiterating that "as long as he struggles, we struggle".

The tot was due to have his life support switched off last week after the family reached the very end of their legal battle, but they have been given more time by doctors at Great Ormond Street.

The Vatican children's hospital studied whether it was possible for Great Ormond Street to transfer Charlie to Rome.

Enoc said: "We know that it is a desperate case and that there are no effective therapies".

Gard was born with a rare genetic condition and can not move or breathe on his own.

The pair discussed the case of Charlie, who has been at the centre of a lengthy legal battle involving his parents and doctors at Great Ormond Street Hospital (GOSH), during a phone call, the Foreign Office said. The controversy around Gard has engulfed the Vatican, which infuriated some on the right by not immediately siding entirely with the parents, who want to seek experimental medication in the US or bring their child home to die.

But the U.K.'s top death panel has been affirmed by the so-called "European Court of Human Rights", which is apparently some kind of global death panel that convenes in Strasbourg, France, but reserves the right to sentence children everywhere to die.

On Sunday, Burke released a statement, saying that Pope Francis had expressed hope that the desire of the baby's parents "to accompany and care for their own child to the end" will be respected.

Charlie's parents, Chris Gard and Connie Yates, would like to try an experimental treatment in America that, at present, isn't able to cure Charlie, but might restore some of his brain function while the disease progresses.

With global interest growing in the case, the British government said Wednesday that it backed the doctors against the potential Italy move, meaning that the boy will likely be disconnected from life support.

On Friday, the day Charlie's life support was initially scheduled to be disconnected, the Pope used his Twitter account to send a clear pro-life message in the infant's favor.

The baby's plight has also attracted the attention of US President Donald Trump, who on Monday tweeted that the US "would be delighted" to help. Enoc said this was "sad" but "our doctors and scientists are still looking into the possibility".

Reacting to the European court ruling, a spokesperson for the Catholic bishops' conference said the definitive ruling that "baby Charlie Gard can not undergo any further treatment is heartrending, most particularly for his parents and family".

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