Wednesday, 22 November, 2017

Charlie Gard's parents given more time before life support is turned off

EU Court Sentences 8 weeks Old Baby To Death Devastating: Charlie Gard, the baby at the center of a fierce legal battle for alternative treatment options, is likely to sadly die today
Sammy Stanley | 01 July, 2017, 00:39

The couple even shared a heartbreaking photo of them lying with Charlie and said that they were spending their last night with Charlie. The court allowed the doctors to switch off the life-supporting system.

According to Great Ormond Street Hospital in London, where Gard is a patient, the boy suffers from infantile-onset encephalomyopathic mitochondrial DNA depletion syndrome (also known as MDDS). The condition causes progressive muscle atrophy and brain damage. He can not hear or see, and is unlikely to be able to develop either ability.

Charlie's parents raised 1.3 million British pounds to pay for the US treatment, but were still told they couldn't make use of it. "It is very unlikely that he will improve with that therapy".

The prospect of the nucleoside treatment having any benefit is as close to zero as makes no difference.

The domestic court decisions had been meticulous, thorough and reviewed at three levels of jurisdiction with clear and extensive reasoning giving relevant and sufficient support for their conclusions; the domestic courts had direct contact with all those concerned.

"We and most importantly Charlie have been massively let down throughout this whole process".

Baby Charlie was born "perfectly healthy" at a full term on August 4, 2016, but after a month, his parents noticed that he was less able to lift his head or support his body weight compared to other babies his age.

Twelve days later, judges in the European court of Human Rights began investigating the case after lawyers that represented Charlie's parents sent written submissions.

However, the court in Strasbourg, France, ultimately ruled that the imperative to act in Charlie's best interests and not prolong his suffering outweighed the vanishingly small likelihood of successful treatment.

The debate over Charlie's life is about balancing the moral dilemma of parental rights versus the state's duties to protect the wellbeing of children. The European Court of Human Rights (EHCR) denied the appeal of London parents Chris Gard and Connie Yates, which means that his life support will be removed and, at some point, he will be allowed to die.

"'They don't want to look back and think 'what if?'" he said.

However, on Friday, Yates told Mail Online: "We have been in talks today with Great Ormond Street and they have agreed to give us a little bit more time with Charlie. We know what day our son is going to die but don't get a say in how that will happen". That is our last wish, if it went this way, the way it's gone.

The parents of a terminally ill boy in the United Kingdom have learned that their son will not be allowed home to die.

They said no to both.

Yates told the High Court in a past trial that she "would do anything" for Charlie and that he was a "prisoner" in the hospital, The Sun reports.

The parents said they begged the hospital to give them the weekend in order to allow family members to say goodbye. They can't come before tomorrow.

"We would ask you to give the family and our staff some space and privacy at this distressing time".

According to the BBC, Connie Yates previously stated that if she and her partner were not allowed to take Charlie to the USA for the experimental treatment, they would put the money donated to them by members of the public toward helping other children with mitochondrial disease.


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